CLINIC

We took Kael to clinic today. It was the first time he has had his port accessed so it was a bit traumatic. The nurse was being so sweet and didn't want to make it a bad experience for him but he was very nervous anyway. It took two of us to hold him down but after she got the needle in he decided it wasn't so bad. He got vinc and I will start steroids again tonight for five days along with 6MP and septra, and methotrexate on Thurs. He is so brave and I am so amazed by the strength that he shows. It killed me to hold him down while they did it. I know he just didn't know what to expect and when they come at you with a needle, it is terrifying. I felt like I had ran a marathon after it was all over. It was pretty intense for a minute! Dr. Afify wants to have an MRI done at our next appointment to see if the brain has returned to normal. If it looks good we will put methotrexate back in his spine (back pokes) instead of the ARA-C. Our next back poke is in eight weeks.


Daddy couldn't go with us today and I know how hard it was on him. We made it through and hope he can make it to the next one! We love you DAD!!!!! (I joke with Matt that he has to get on the blog to find out what is going on in his life but it really is true).


P.S. As I was tucking Kael in tonight I asked him about the days events. I told him I was sorry I had to hold him down while they poked him and he said "that's okay, I shouldn't have cried". I can't even put into words the strength and support he is to me!