-Kael's oral antibiotics (given 3x/day) is sick, gross, and disgusting. I have tasted all his chemo's, steroids, septra and what-have-ya and nothing is as gross as this stuff! I would put it in the same category as battery acid, if that is even possible. He takes this stuff without complaining. I am such a wimp.
-Home health came last Tuesday to de-access and re-acess his port (the needle can only be in for 7 days). Terrible experience. After poking him twice and pushing saline in (painful for Kael) - she still wasn't in so I politely told her I would take him into infusion and have them put a new one in. Two hours later, disaster averted.
- Saturday we had plans to leave for Twin Falls so we could trick-or-treat with Jordan and Barb and their kids. Long story short, Kael's line came out so we had to re-access it. The home health nurse was so helpful, we ended up doing it ourselves. Matt did a great job and I now believe we can do just about everything without the home health nurses:) (No offense to any of you nurses out there, we have just had one bad experience after another with home health this go-round). My mom said she lost quite a bit of sleep over Matt and I doing this ourselves. Sorry to worry you mom and thanks for the prayers!! We were not able to trick-or-treat but had a great time on Sunday with family. Baby Ella is adorable and I enjoyed holding her much of the day:) There's just something about baby girls!!!
-Spent about 40 minutes in the principles office today. Thankfully it wasn't because anyone was in trouble, that day is coming. I made Kael go back to school (3 weeks out) so had to take his meds to him. The principal met me at the door, called Kael over the intercom and had us chilaxin' in his office while his IV was going. Pretty funny. The thing is, I don't think this guy could be mean if he wanted to. However, I just want to stay on his good side should Trey and Kays think of something crazy to do!!
-Trey's Birthday was celebrated with Ella's blessing. With cousins to play with and Halloween the day before, it couldn't have been any better! Another funny thing Trey said this past week was "Mom, am I awergic to Satan?" Was it naughty of me to tell him that he is??
-Tommorrow we celebrate the last day of ANTIBIOTICS. YEEHAW!!!! These past three weeks have really made me realize again how tough this whole cancer thing can be on a family. But more importantly how tough it is on Kael. His strength is simply amazing. I love you buddy!
11 comments:
What a busy life...you guys have the cutest kids ever. I'm glad we got to spend some time together this past Sunday. love you!
glad to see everyone is smiling in the photos. I love the nest hair-do...that's great!
OK where does Trey come up with this stuff, what a comedian. I was wondering what surgery you had to perform from Justin's email, so now I know, thank goodness for blogs;) Trey's cake is awesome, you never cease to amaze me. Sounds like your baby hungry if you held that "baby" all day--here comes #5!
What a cute cake and teepee for Trey. You are amazing. I love your family so much and wish I could give you all hugs. What a creative little girl you have. Tell Mattie good job on the hair idea. Also I got the stuff in the mail you sent. Thanks so much. I am excited to try them out. I might be calling you with questions though. Love you guys!!!
I love Trey's birthday cake- good job. Poor Kael, I bet he is glad to almost be done with his antibiotics.
I love Mattie's hair idea! She's such a great girl! All your kids are just the cutest things!
I thought I had a lot going on. Sorry guys. I am glad that Kael is feeling better! Matties hair is so cute, I will remember that idea for Ayns, I love Trey's cake. You are amazing. Keep that naps going, what will life be like if all your kids are awake all day!! I don't even want to think about that in this house. Miss you guys!
I am sorry you have had a long month. We have been thinking about you guys a lot! Come and hold my baby girl too if you would like. She loves any family members!
Crea LOVED seeing that Trey makes great comments like "just calved" to you- he keeps giggling. Kael is one tough guy (and so is his Mom).
What a busy life...you guys are so amazing. What a tropper Kael is. You are so good with your kids, the hair, the cupcakes and cake, the IV. How great you guys are.
Wow I can hardly breath after just reading it. Thanks so much for comming up to see us, it was good to see you. Hope Kael is doing good going back to school. We miss you guys and hope to see you at Christmas. Thanks again my kids still talk about you comming.
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