Tuesday, January 26, 2010

H O M E

It is so nice to be HOME! It has been a crazy few weeks and I have a few days at home . . . so exciting! I should be doing other things, but . . . not right now.

Since getting home from the hospital, we have had Kael back to clinic twice. Last Tuesday we went to get started back on Chemo and do a backpoke. We finally got to see his DR!!!! She was not excited to start him back on chemo because of the pox that were still visible. She decided against the backpoke as well. She gave him another week off of meds. The steroids we give him every month are like pouring "petro on a fire" (the dr.'s words) to a kid that has/had the chickenpox. So absolutely no steroids! She also said that the Acyclovier (anti-viral) is truly a miracle drug. Kids with leukemia and chicken pox wouldn't survive without it. I am so glad we found this out after we were home! The Acyclovier is hard on the liver and kidneys and she blames it for the kidney problems in the hospital not the Motron. Kidney function is back to normal. Yesterday we took him back to clinic. She was still not happy with the way the pox look on his arms but is nervous about staying off of chemo much longer (as are we). He had a CBC (blood draw) done and got his Vinc while we were in clinic. We started him back on his meds 100% last night. If he is not able to handle all of it we will adjust it accordingly. Since the virus stays in your body she worries that something will bring it back to the surface if we are not careful. She told me that his case was quite severe and we were just lucky that we didn't have liver issues as well as brain issues (another thing I am glad we learned after the fact!). Stinkin' chickenpox!! She says no school until his backpoke in three weeks and then we will assess the situation. This was an answer to our prayers. We are debating on whether to send him back at all. I am upset about the way things were handled at the school and the lack of concern since. I hope to get ahold of the school nurse sometime this week and plead my case. I stink at being his teacher! We have already had tears this morning . . . and I'm not even going to tell you if they were mine or his!

I have to give a big THANKS to my friend HOLLY. She was willing to drop everything and go to Salt Lake yesterday with me. I really needed it! THANKS SO MUCH!!

It has been a crazy couple weeks around here. Trying to catch up for lost time at the hospital and then getting back into a regular routine:

Monday, January 18
Holiday for some. Laundry. Grocery shopping. Matt took his weekly Idaho trip.

Tuesday, January 19
Clinic. (Big snowstorm) Dropped Matt off at the airport so he could fly to
Seattle for company meetings.

Wednesday, January 20
FB Meeting. They recently roped me in to being the Cache County Farm Bureau Secretary. I am such a rookie that it is pretty stressful. I hope it gets better:) THANKS to HOLLY for keeping my little boys that day.
11:30 p.m. Yes, they should be in bed but what are my kids doing? Sneaking out of their beds and climbing on the washer to get the toothpaste that mom hides from them
because they eat it like candy.
Thursday, January 21
More snow. Mom's Birthday. What a great mom I have! Pack for the weekend (FB meetings in Bryce Canyon). Dinner to a family in the ward. Check Matti out of school and head for Rhonda's. Suppose to pick Matt up at the airport. Decide it is best for me to get to Rhonda's before it storms again and the roads freeze. He rides to Richfield with a co-worker and spends the night. Get word that they have closed the roads into Bryce Canyon, worst storm in 30 years.

Quite a storm but it made beautiful scenery!
Friday, January 22
Take a walk with my little sis. Let 5 kids run the house with a sleeping Nate while we enjoy a few minutes together. Loved it, thanks Rhonnie:) Head for Richfield to pick-up Matt. Arrive in Bryce a few hours late. Enjoy meetings and getting to visit and meet new people.
Saturday, January 23

Finish up meetings and head for home. Pick-up kids and return home @ 9:00 p.m.

THANKS to RHONDA and JAMIE for keeping my kids!!!!

Matti and SeOnna with Oreo (SeOnna's toy dog). They dressed it up and packed it around in a purse. They had a blast with that tiny thing!!

Sunday, January 24
Grandpa Hunt's Birthday. Sleep IN!! until 8:00 a.m. My week to stay home with Kael (yay!) Matt attends church meetings. I start laundry after realizing he is leaving again this week and there are no clean clothes in this house! Feel guilty all day. Is this really a case of the 'ox being in the mire'? or just the cow getting stuck in the crap?

Monday, January 25
Happy Birthday Julie, Amy, and Kevin. Clinic. Matt in Idaho.

Tuesday, January 26
Happy Birthday Rawlin. Matt leaves for Indiana until Thursday. I should be doing taxes . . . laundry . . . dishes . . . cleaning house . . . ect. Enjoying just being here for a few minutes. Matti turns 9 on Friday. The kids and I are heading to Gma Platt's for the weekend for my Grandma's 85th Birthday Celebration (Saturday the 30th). Can't wait to see cousins and family that I rarely get to see. Need to squeeze in some party time for Matti before we leave. Hope to see Matt for a few hours in between:) . . . . . . . . . . .and Kayson just puked. Welcome home, welcome HOME:)

DISCLAIMER: I only write all of this so that in a few years I can look back and know exactly why they put me in the "Nut House". Oh, and maybe for scrapbooking and journal reasons!
(How about all those Birthday's crammed into a nine-day span!!)

THANKS AGAIN TO EVERYONE THAT MAKES MY CRAZY, WONDERFUL LIFE POSSIBLE!

8 comments:

Stewart Family said...

Wow Lena!!! I don't even know what to say. I am worn out just reading about all that you do. You are amazing. Wish I could be there to help out, but I guess it is good that I am not adding my four to your four!! I will cross my fingers that life slows down just a little and Matt can stay home for a few days in a row!!!! Love you guys

Child Family said...

Thanks for the update! You and Matt are amazing parents. I agree with Rikki, I got worn out just reading your post too. I hope that things start going well and that everyone gets better. I miss you guys ton and can't wait to see you all in the summer. If you need anything from afar, let me know. Love you!!

The Callahans said...

Love you Lena. If you go to the "Nut House", maybe I'll come live with you; just for the fun of it! Hang in there babe!

Marcy M Miller said...

You are busy! Sorry that Kael has to stay home from school and you have to be the teacher- I can't blame the tears and frustration from either of you- home schooling is not easy!!!! Have a fun weekend and hope Matti has a fun birthday.

ronnieandjess said...

Wow is all that I have to say to that. You are such a women. Call if you need me to do anything. I would take your kids for a weekend. I would even meet you. I will miss seeing everyone this weekend I am not going to make it to Grandma's party. Tell everyone Hi!

Jennifer said...

For the first time in 4 years I wished I lived in Logan. I would love to be around to help you out.
But when you decide to go on that long needed vaccation you know where to come right?! Hang in there! You are amazing!

Jordan and Barbara said...

Lena I have had sick kids for three weeks and I need to go to the nut house. All this time I have been asking myself why you are not already there. All I can say is you are my hero!!!!

Holly Jo said...

Silly girl...don't thank me, I should be thanking you for all the fun I had!!! You rock girl!!! =)